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Thread: Living on Matt time

  1. #1
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    Living on Matt time




    How a 17-year-old responds when doctors say they’ve done all they can

    If the past nine months has taught 17-year-old Matt Leffler anything, it is that time is not an infinite resource.

    He knows the hard tumor in his stomach that doctors found in August can suddenly grow and kill him anytime.

    Yet to look at him is to see not death but life, says Sweet Home High School Principal Joleen Reinholz.

    “It’s not the years in your life, but the life in your years,” is the cliche that has become his philosophy.

    Except for the stabbing pain in his gut, Matt feels good. He intends to be at his graduation in June, even though he and his doctors aren’t sure. As the time draws near, with plans for the prom and talk of college, he has inspired some who might not otherwise give death a thought.

    It is as if the knowledge that a person’s time is running out charms people out of formality and draws them close. Matt seems to use the power for fun and to comfort.

    As he walks the halls of Sweet Home, the tall, thin young man in moccasins and jeans cinched with a belt of faux leather and chrome rivets has the aura of celebrity among the students.

    After a few minutes of joining a friend’s lunch table, he gets up to leave. The girls get up to hug him first. What starts with him taking the video game controls in the senior lounge soon becomes a gathering of 10 playing with him, watching, just being close.

    It has been hard since December, living with the surgeon’s news that he couldn’t cut away the tumor that obscured the other organs.

    Yet, ever since Matt gave up on chemo and returned to school this semester, he feels better.

    So does everyone else.

    There was a time when Matt was hopeful. Those days are gone.

    “It’s not just like you’re climbing up on top of a mountain,” he said with a heavy sigh. “It’s like you’re climbing up on top of a mountain, and then you’re falling down.”

    The tumor could start growing right now and, he said, “I could be dead in a week.”

    He patiently enunciates the disease. Desmoplastic small round cell cancer, which is known for developing in teenage boys.

    Alone in his family room in the Amherst neighborhood of Willow Ridge, Matt folded his thin, 6-foot-2-inch self into angles and sat cross-legged. He was getting ticked off at the guys in his band for blowing off practice again. They wanted to perform. They had to get ready.

    There wasn’t time to waste.

    He would play anyway. On the carpet, he spread out a few songs written on notebook pages, including one about a girl so beautiful she freezes him in his tracks.

    The former pole vaulter on the track team who wanted to be a history teacher one day, Matt missed most of the fall semester. There was a spinal tap, bone marrow extractions and his colon was threaded through his stomach, into a bag.

    A tube in his chest delivered the highest dose of chemo. For two weeks at a time, he threw up every 10 minutes. He moved from his bedroom to a hospital bed, still in the family room, with rumpled blue sheets.

    Life at school is better than life with that nasty poison.

    To his classmates he is a lesson in candor and compassion, which he dispenses with occasional, twinkling sass and unhurried teenage cool.

    On a recent morning at Sweet Home, crowds of students washed against him, two girls ran up — “Matt!” — and embraced him. The hugs, arm touches, and hand clasps that would go on for the rest of the day, had begun.

    The place had the goofy look of a dream. A fun dream of a teeming, Dr. Seuss hospital parade. There were kids in striped tights, hot pants, mini pink kilts, green boxer shorts, mismatched slippers, bathrobes, cowboy hats and a shiny red bridesmaid’s dress.

    It was wacky-dress-up day, a call for school spirit and a protest of smoking. But in jeans and a plaid button-down over a T-shirt for a friend’s band, Matt made no effort to look weird. With friends, including one who smokes, he stopped at the information table and examined a bottle of water that had turned tea colored from a cigarette floating inside.

    “I don’t need another cancer,” he said.

    Sometimes he pays attention in class. Sometimes he wanders the hallways. In gym, which he has every day to make up for missing last semester, he is his true athletic self, like the portrait of him on a snowboard on the family room mantel.

    A game of team handball unfolded. Matt passed the big red ball. From the sidelines, sophomore Xavier Walker said Matt is subdued.

    “Now he just don’t have the sparks,” he said.

    Courtney Jakubec watched the game, too. She remembered the day when everyone wore the Matt Leffler fundraising T-shirts that his best friend, Taylor Heald, designed. She feels bad for him.

    “It was just like so sudden, you know.”

    In the senior lounge, where kids played poker, ate french fries and sank into the leather couch, his phone vibrated.

    “Hello?” “I’m not supposed to be using my phone in school. You know that.”

    It was Reinholz, the principal. She walked in to finish the conversation in person.

    When she heard Matt was coming back to school, she consulted counselors and considered a formal announcement, to try to get everything right.

    Matt wanted to let things be.

    “He reads people,” she said of the increasingly affectionate young man he has become. “He reads their emotions. He is very attentive.”
    continued

    http://www.buffalonews.com/home/story/637361.html

    Make sure and watch the video in the article.

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    Matt Leffler gets to graduate, plans to ‘live life’

    Sweet Home alumnus gets standing ovation for message of fairness and gratitude

    People have been telling Matt Leffler that life is unfair. The young man who finished the year knowing he had a tumor in his gut that would kill him, took the graduation stage Friday evening to give the last speech, and told the packed auditorium that those people were wrong.

    He said he was lucky to have so many friends among the 320 Sweet Home High School graduates gathered in the University at Buffalo’s Center for the Arts.

    “When I look at my life I feel that it is fair,” said Matt, who returned to school in January after missing the first semester, sick with chemotherapy treatments that he gave up after surgeons found the cancer was too embedded to remove.

    “Here at Sweet Home, we’re family. . . . I’ve learned from them. I’ve learned with them,” he said, before a standing ovation of people, brushing tears from their eyes. “I feel like somewhere along the way I got cheated in my time I got to spend with them. . . . I’m a selfish person, I want to keep them all.”

    Before he spoke, Matt — fighting off nausea throughout the ceremony — rooted for his classmates, leaning forward in the front row as they walked across the stage for diplomas along with an announcement of their plans to join the Army, study nursing, become pharmacists and teachers, get business degrees or learn how to fix cars.

    Cancer kept him from making plans beyond his diploma.

    As for Matt’s future, the announcer read from the graduate’s own note, saying only that he would “live life.”

    “Matt never stops,” said Andrea Finley, who sat next to him before the ceremony started. “You do. You inspire me. . . . I learned not to complain. To be grateful for every day.”

    Matt teased her that Colgate University, where she plans to study next year, is really the place where they make toothpaste. Then he put his arm around her.

    The warm exchange was typical of the year that has gone by since stomach pains turned out to be a kind of cancer tumor that often strikes young men.

    On his chest, beneath his graduation robe, is a new tattoo.

    A knife slicing into a heart with wings is his symbol for his journey in life. It is, he said, about overcoming obstacles and about rebirth.

    As everyone else plans on college, he seems at peace. He takes joy in just being with people. And staying cool and calm as people fluster around him.

    “I don’t have goals. I don’t have hopes or dreams. I don’t have wants or desires. There’s nothing that I’m looking forward to. Other than graduation, I guess,” he said in the days before he walked across the stage to get his diploma. “I just like hanging out with people that make me smile.”

    Many people have been surrounding him since the diagnosis in December—that the cancer cells couldn’t be cut away.

    That’s when Matt gave up on chemotherapy. He had already missed the first semester of school, too sick to get out of bed. If he was going to die before he could go to college and study to be a teacher as he had hoped, he wasn’t going to miss his last semester of high school.

    His friends seemed awkward at first when he came back in January with a colostomy and patchy hair, but that didn’t last.

    Matt is hard to resist. Tall, thin, handsome, a tease, the 18- year-old who once played football, was a track team pole vaulter and snowboarder, has an infectious popularity.

    At school’s end two weeks ago, he ended up with a 97 average, graduating with honors and an award for courage and character.

    Matt thinks he knows why he sometimes seems more in demand than usual: “Once you realize it’s not going to be there forever,” he said, “you try harder to get it.”

    His connection with his 19- year-old sister, Amanda, is deep. She just knows him better than anyone.

    It was hard for her to see him so sick last year. She did things for him she didn’t think she’d do for anybody — emptying a vomit tray, changing a feeding tube, worrying an air bubble would get stuck.

    “I’m really happy that he’s graduating,” Amanda said. “He seems to be having a really good time.”

    One of his nicest times lately was at prom a couple of weeks ago. He and his date, Jamie, dressed in a sparkly black dress, were crowned king and queen as the crowd parted before them.

    “So me and her started slow dancing in the middle and eventually people started dancing,” he said. “We looked pretty good.”

    He got to spend a night partying with people he’s known his whole life. As he danced, he left his shirt open and the top of his tattoo peeked out. By the time Matt went to sleep, the sky was light.

    And that’s all he wants to say about what happened that night.
    http://www.buffalonews.com/home/story/716276.html

  4. #3
    Seraphim Sass
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    This was really moving. What a brave young man. I have no doubt his parents are very proud of him.

    My prayers, wishes and hopes to you Matt. Live long and prosper.
    Report child Abuse 1-800-4-A-CHILD * Missing and Exploited 1-800-THE-LOST

  5. #4
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    Thanks for the happy update Raven!
    Dear Mommy...I see you smile down there below...are those tears of joy you show? I'm glad you're happy, although you lied...I'd love to be right by your side...but by your choice, I view from above...tell my Grandparents I send my love...it's Beautiful here, is all I can say...your life will go on... without me in your way. Love Caylee XOXO......
    NO JUSTICE FOR CAYLEE - copyright that!

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