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Silvahalo

Perfect

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<My post from Athena's "Sofa King" thread>

"Occurring or developing later than desired or expected; delayed; slow or limited in intellectual or emotional development or academic progress."

Based on these definitions of retarded, one might call my son Nathan retarded; but he's not. After 3 years of speech therapy, we were just given a recent evaluation on Nathan and his latest performance on the Preschool Language scale-4(PLS-4). To be exact, we were told by his speech therapist, "...demonstrates a speech and language disorder characterized by poor comprehension of age-appropriate linguistic concepts and decreased use of language". "Disorder" being the key word here. Prior to this latest evaluation, we could not be told with all certainty that Nathan had a pronounced speech delay vs. a speech disorder. I ask what is the difference exactly. One will almost entirely recover from a delay, a disorder is more likely to stay with one to some degree.

His speech is "occurring and developing later than desired or expected"...still, he is not retarded, not in the sense that most understand the word. He has been slow in comparison with his peers in developing emotionally and intellectually....so then again, one might say he's retarded, but still, he is not. His mental faculties and life skills in coping and socializing are normal. As his adaptive skills are on target, took some time and struggled with some, but today, he is in every sense a "normal" child of 5 yrs. If someone were to ask me if my child is retarded or mentally handicapped, I guess I would take some offense because the connotation to that particular word has always been a negative in meaning, and I might think he is being made fun of, unless with all seriousness, one would ask in a polite and curious way, "is your son mentally challenged". Still, admittedly, it would be hard to hear that question because no parent wants to hear their child associated with that word. We all want to believe the skies the limit for our children, but the reality is some have limits. No it is not deplorable the notion of comparing ones ability or lack of it to being retarded. But anything out of the "normal" range of description is shunned by society, openly or in private. I'd go further to say, on a personal level my own infliction of Dyslexia makes me far more sensitive on the subject, as I felt I was just "stupid" and really didn't have the ability to pursue a higher education. I went undiagnosed for years until college.


To know Nathan is to love him. He is by all honesty, the sweetest, kindest most gracious soul I have ever had the pleasure of knowing. If he was not so gifted in one area, and this is the case, there is no doubt he was blessed with abundance in others. I guess what it comes down to, as his mama, I know Nathan has struggled with speech and might always have troubles in this are but I just know in my heart he will get past this one day. Don't ask me how I know, but I know and I won't have anyone telling him otherwise because of a word that in part describes his limitations. I can think of a better word that describes Nathan as a whole....perfect.

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Updated March 21st, 2009 at 02:28 PM by Silvahalo

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Comments

  1. flawed_existence's Avatar
    You know I love you, Silva.
  2. Sister Iroz's Avatar
    Silva thank you for sharing this and you go with what is in your heart. They told me Whitney was going to die, then they said if she lives she would be in a wheelchair and wouldn't be able to talk, walk, lift her head and you've seen pictures of her and she can do all that she is a MIRACLE! I knew in my HEART they were wrong so go with it. I love you and again thanks for sharing.
  3. Insomniac's Avatar
    Silva, with a mother as caring and devoted as you, I have no doubt that he will be able to overcome any speech delay or disorder.
    He sounds like a wonderful little boy.
  4. jo_momma_82's Avatar
    Silva, I rarely admit this but, now I will... I had a speech problem as a kid and I saw a speech therapist from 4-8 years old. The only problem I remember is, I couldn't properly annunciate words with S and F in them but, I never felt singled out or "delayed"... my grades weren't affected and the only comments I got were that I sounded like Cindy from the Brady Bunch, lol.

    The majority of people that have known me since childhood don't even remember this so, have faith that with speech therapy and your diligence... Nathan will be just fine and in a few years, it won't even matter.

    Also, when Ashton started going to daycare at 3 y/o, I was very hurt because a teacher insisted that his speech was delayed and he should have an assessment, I did have him evaluated through an early steps program and I was told how I could work with him. Now, he's 5 and articulates better than my oldest did at that age. Kids just develop differently.... my kids have all moved along at different paces and I've learned not to compare too much.

    Now, down to the "R" word... I cannot stand that word ! My mother is a case manager and was a group home manager for a place called the ARC and she also helped with the special olympics... I got to work in a group home through the ARC when I was 18 and I cherish every single person that I got to know and help and I think that the "R" word is just despicable.
  5. Stella's Avatar
    Thanks for sharing, Silva. I wish you had been my mom. She was embarrassed by my birth defect (still is) and had no compassion at all. Just love him no matter what.

    My granddaughter also has speech problems and had speech therapy for a while. Now that my son has custody and has had a complete physical done, it's been discovered she has some significant hearing loss in one ear. She's also ADHD and is "emotionally" challenged at the moment.

    I just had a week-long visit with her and found that, with her speech, patience and practice, in just those few days, made her a bit less shy.

    You're a wonderful mom! Again, thanks so much for sharing!!

    {S}
  6. LiltingBanshee's Avatar
    Hi Silva, my son had a speech delay when he was little - I think the speech problem held the rest of his development back too. But he's caught up, he's 16 years old now and is doing great. It was scary when he was little, wondering what the future would bring. But with time and hard work, wonderful things have happened with him.

    I think my son's experience has made him a more compassionate and helpful person. Your son sounds like a delight.
  7. Silvahalo's Avatar
    Wow, just wonderful support here!
    Special, Jo, Stella and LitingBanshee, thanks for you personal input.
    We take it one day at a time, and it is hard work but so worth seeing his progress and that smile that just can't be bought.
    Nathan is very bright and works hard on everything he put his mind too...I think at the end he will be O.K., just didn't expect the eval. numbers to be so daunting.

    Again, thanks so very kind.

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