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View Full Version : Deadly Disease - sisters have too much skin


skeptical
March 18th, 2008, 03:56 PM
There are two sets of sisters over in the UK that have been diagnosed with a rare but deadly disease:Harlequin ichthyosis, or having too much skin. Read more here:

http://www.telegraph.co.uk/news/main.jhtml?xml=/news/2008/03/17/ngirls117.xml
Miss. Hill
March 18th, 2008, 07:54 PM
Those poor girls! What a horrible way to live! It looks painful removing the excess layers. Their skin looks sore. I hope they find ways to make these girls lives as normal and comfortable as possible :(
CPL CHUD
March 18th, 2008, 08:49 PM
Reminds me of "tree man"....

http://img.metro.co.uk/i/pix/2007/11/growthmanR_450x594.jpg

I'm a pretty big advocate of gene research. These cases are just the tip of the iceburg why.
KillBill20
March 18th, 2008, 10:06 PM
Those are creepy on so many levels. Anyone who thinks we shouldn't do any kind of gene research is full of shit, there are two perfect examples as to why we should.

~Kyle
ImmortalOne
March 18th, 2008, 11:09 PM
Chud is there a name for that defect?
impqueen
March 19th, 2008, 03:24 AM
Ah, Dede, the Indonesian dude with a wart virus and no immune response to speak of.

Dude is a mess. Last thing I heard he had been supposed to show up for treatment but went back out on the road with the circus instead, probably due to money issues. Now i gotta go look and see if there are any new updates on that guy.

Seriously, massive wart formations aside, the guy has beautiful bone structure. If he could be cured, he could be Derek Zoolander.

Interesting stuff: http://en.wikipedia.org/wiki/Dede_(Indonesian) - He has tumors in his back (not so good) and the Indonesian Minister of Health is a right bitch who would rather let this guy die than risk losing money on a vaccine made from Dede's virus samples. Nice.
CPL CHUD
March 19th, 2008, 11:41 AM
Chud is there a name for that defect?I don't think there is. I first saw him in a Bizarre magazine. According to them he didn't develope those "things" untill later on in life and he's the only known case if I remember correctly.
Lizard
March 19th, 2008, 11:46 AM
I don't think there is. I first saw him in a Bizarre magazine. According to them he didn't develope those "things" untill later on in life and he's the only known case if I remember correctly.

According to the Wikipedia article, it's called epidermodysplasia verruciformis (also called Lewandowsky-Lutz dysplasia or Lutz-Lewandowsky epidermodysplasia verruciformis), and there's one other case.